Need a new GJ

Oliver's GJ tube is starting to show signs of erosion so it's time to go back to Connecticut Children's and have a new one put in. His appointment is Monday afternoon, hopefully the current tube lasts until then! If it doesn't we'll have no way of administering his meds, or food, or fluids and he'd have to be admitted to the hospital.

Because he already has a GJ in place, the replacement procedure should be very simple. It still needs to be done in the Radiology department to make sure it's ending at the correct place in his small intestine. The good news is Oliver won't need to be put under, anesthesia is very dangerous for a child with MLD.


Ollie got to hang out with his Grammy on Sunday :)
(and Grampy and Uncle Greg)



Daddy gets Ollie ready for bed. Look how big he's gotten!


Ollie takes an early Saturday morning nap


A beautiful day for a fall walk with his favorite nurse.


Nap time with Dad.