We are not doing the change to a GJ tube yet. The doctor (and we) thought it was best to try to slow his feedings and to change some if his meds. He is now on a continuous feed from the time he wakes up until the time he goes to sleep. We also are trying a low dose of erythromycin to help his stomach empty. The past two days he's had no issues and his breathing sounds crystal clear. If he gets aspiration pneumonia again then we can try even more meds but may eventually have to go with the GJ tube.
He hasn't had any trouble keeping weight on. He's up to 33 pounds now and everyone who sees him comments on his length. He's our big boy now.
Here he is at school on Thursday.
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