A family in Utah recently had 3 of their 5 children diagnosed with MLD. It's simply devastating. Here is a News story about their heartbreaking situation.
And here is their family blog if you are interested in following their story. Two of the children are undergoing bone marrow transplants, and they are still looking for a match for their son.

Campbell Family Blog

Ollie woke up with a fever again and then slept all day. Even when the fever was gone, he kept sleeping. He was awake for 15-20 minutes at a time, but seemed so dazed and out of it. Hopefully tomorrow is a more awake day.