Ollie has been running a low grade fever for two days. :( and every time he wakes up he has a few seizures. His seizures always happen when he's waking up, it's strange, but in a way I'm glad they're so predictable. It allows us to be ready with his meds when we hear him stirring in his bed. We'll run in and administer them right away. They've been lasting longer too, almost 30 seconds of back arching and screaming. They are the most horrible thing to watch as a parent, we're so helpless, there is nothing we can do but hold him and wait for each one to end and then pray that no more are coming.
What an awful way to wake up. Our poor baby.
I feel like I sleep with one eye open and one ear alert at all times. I never feel like I actually sleep.