Tuesday, September 4, 2012

After a very tough morning with Oliver in a lot of pain we've finally gotten his medicine changed from clonazepam to diazepam. He cried all morning, arching his back and screaming. The pharmacy didn't have the liquid diazepam but they said they should have it by tomorrow. I really hope it helps him.
He was inconsolable at times and would only stop crying if we rocked him back and forth on our shoulder while walking around, much like calming a newborn. Only he's not a tiny 7 pound newborn and he's very difficult to hold this way. He's 26 pounds and his legs are stiff and stick straight out. His legs don't hug you around the hip like a normal baby or toddler. He has no neck support, he doesn't lift his arms out of the way and they get stuck between you and his body. When you try to pull them out his head and upper body fly backwards and he almost falls out of your arms and then his head comes flying back at you and his jaw slams into your collarbone and makes a really painful sound. Then, while you walk around with him, he'll try to pick his head up to look around but he doesn't have the strength or control and his face inevitably comes smashing into our shoulder bones. We're runners, this isn't a soft landing, and one of the rare times I wish I had more meat on me. He'll keep trying though. So we wear blankets on our shoulders as cushions, but they slip off as we are constantly adjusting him to try to make him comfortable. I've tried to think of a way to compare what it's like holding him, but I haven't been able to come up with anything. It's not like holding a noodle, not like a sack of potatoes, more like holding someone who is diving into the pool like a pencil, and that is simply the stupidest comparison ever. I'm really tired. Trust me, it's just hard.
He woke up from his nap and had a better afternoon. How adorable is this picture? And he was even bending his right leg! Goodnight everyone.

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