Monday, May 5, 2014

No words

There are no elegant words that can be written to describe what we're going through right now.

People have been asking "How's Oliver?" and we've been saying pretty much the same thing each time, that "Oliver isn't doing well, but he's comfy." The second part is true, but the first part is understating the facts. The truth is, our son is dying. And although for two years we've known that this day would come, the time to say goodbye is here.

We've known since last week. We've been holding him, loving him, kissing, hugging, and cuddling him. These will be our last hugs and kisses. How is that possible? He only just turned 4.

Each day he has become more and more fragile, his coloring is blueish, his heart rate continues to slow, and for the past 3 days his respirations per minute have been extremely low.

But he is comfortable, and we aren't just saying that. His amazing nurses have given us such a gift. He is truly peaceful and in no way suffering.

We've told him that he can go whenever he is ready. Mommy and Daddy will miss him so very much, but it's ok to go now. We are so proud of how hard you've fought baby boy. We'll be okay, we'll take care of your little sister for you. Go run and play with the angels. We love you.

We all love you.

He's absolutely the toughest little boy we know or will ever know. Despite everything he has faced in his short time on earth he can always make anyone smile, and he blessed us with his own smiles as often as he was able. He's touched the lives of thousands and made the world a better place simply by being part of it.




- Posted using BlogPress from my iPhone

19 comments:

  1. Oliver's love will always be with you. Your love will always be with him. Love never goes away.
    Keep hugging him. You are doing the best job there is.....being mommy & daddy. Please know that you are being prayed for by our family.
    (Amanda had Chris as a coach back in high school)

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  2. I'm trying to hold myself together..I can not even begin to imagine how you are doing it. God Bless You All.

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  3. Oliver has inspired me to take each day with appreciation and eagerness. Oliver is a warrior through and through and the strength someone like him inspires has absolutely changed my attitude. Amazing journeys to you Ollie, you've given my heart much courage.

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  4. I have followed your blog for a while now. There are no words I can think of to say to you. You don't know me, but I feel I know each of you. My thoughts and prayers go to all of you. Oliver is going to rejoice with God for giving him such wonderful loving parents. I continue to hold your family in my prayers.

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  5. Oliver is a true inspiration of what bringing happiness to ones life is. I am so sad for you as a parent to have to go through such a tragic event. My heart breaks for you and at the same time I am so amazed at how much he has taught me. I have never met him but am so greatful of what I as a person has learned from a couragous little man.

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  6. I have felt your pain and you are in my thoughts and heart. Hold onto your wonderful memories and let go of your struggles... It's never goodbye.

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  7. It is hard to read, but I do because I know it is important for me. I am sorry that anyone has to go through this. I am thankful to be able to share in some small way with you. Oliver and your family teach us about love and what is important. I hope Oliver and your family can find peace and joy in your lives.

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  8. Team Oliver NorwichMay 6, 2014 at 10:38 AM

    Our thoughts are with you guys! We can't even begin to imagine what you're going through, and are amazed by your strength. Oliver has been an inspiration and we are honored to be a part of your Team. You all are family now, and we will always be here for you!

    T.J., Charlene, Mikey, Carly, Timmy and ALL THE NORWICH AREA FIRE SERVICE PERSONNEL (aka - Team Oliver Norwich)

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  9. Our prayers are with u and ur family. I have been following you guys since Angie had posted his Facebook page on Facebook I love his will power to make everyone always smile!! Ik he will aways be with u guys and I am sure he is thankful for how much u all have fought for him and loved him. God bless you and family..

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  10. Precious Jesus here I am
    A gentle child your little lamb
    Though I am not very old
    I am ready to walk on streets of gold
    Thank you for the time I had
    Making memories with Mom & Dad
    Bring them peace and comfort when they cry
    And let them know its not goodbye
    Bring them laughter and calm their fears
    Let them know in heaven there are no tears
    The pain is gone the joy is true
    Let them know that I’m here with you
    Hold me Jesus and take my hand
    Walk with me thru the promised land
    Let Mom know this was your plan for me
    Let her feel a gentle breeze and know that it’s a kiss from me
    Let Dad know of your plan too
    Fill his heart with gladness too
    For I love them Jesus and they love you
    Hold them close when they are feeling blue
    Keep them close to you and let them see
    All the blessings you gave to me.
    Loving parents, friends and family
    Take me home Lord as I am
    A gentle child your little lamb...... (To making every moment count) Love and prayers,. Antoine and Tracy Chamberland

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    1. I have no words of consolation there are none but this prayer is beautiful.. God Bless Oliver

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    2. That is beautiful. As hard as this all is,Oliver will go right to Heaven with Jesus and meet his family that has gone before him. I believe that. We are here for a reason, and I believe Oliver's job was to bring lots of love together with strangers who otherwise wouldnt have met.We are all God's children and thru this blog and knowing him personally,we all get to be a part of Oliver's life and the family has tons of people behind them and will always be there for them. Oliver shows what love is all about,no matter what he has gone thru,his eyes always show love when you look at them and with his little smiles,shows that no matter what you are going thru,you will get thru it. I know this is soooooooooo hard,but we are only on this earth for a short time and we will all meet again in Heaven. Oliver will be there waiting for us all. Oliver is an amazing boy and we have to remember that we will see him again. Just keep all that love in heart and keep close to God. xoxox. Suzanne Fosnaugh

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  11. I am keeping you all in my thoughts and prayers, and giving my own kids extra hugs, love and attention. We will all be wearing our "SuperHero" attire to school on Friday to remember his courageous spirit. I only wish there was more I could do …

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  12. I will forevermore be a better person because of your little Oliver. You don't know me, but ever since I started following your blog I have been holding all of you in my heart. You have ALL touched my life in so many ways. May you find the strength and peace needed at such a difficult time. God bless you and keep you....Nora Bardo

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  13. I am crying as I am reading this and I can't even imagine how u all feel.I am thinking of u and sending thoughts and prayers. I have a son of my own and don't know what I'd do if this was me. you are a incredible strong family and I pray that u stay strong and have peace at this difficult time. God Bless You & God Bless Oliver <3

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  14. I don't know what to say. I am so sad for all of you. I know you were wonderful parents to Oliver. You gave him the best of care and comfort. You even gave him a baby sister. I am sending you my thoughts and prayers. Keep strong at this difficult and sad time and just keep him in your arms until the end....Give him all the hugs and kisses you can. He is the most beautiful little boy with such a beautiful name. May God Bless you, his dad, baby sister and Oliver at this most difficult time. So Sorry

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  15. Kate, my prayers are with you and your family and with sweet Oliver. Wishing you peace.

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  16. I do not think I can find the words to even express how bad I feel at what you are going through. Know that our Lord will take and hold him close and that his memory will always live.

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  17. My 4 year old daughter has MLD, and we just out of the hospital for pneumonia. Reading this blog is beautiful and heartbreaking and expresses everything I know and feel and experience. I will be thinking of your beautiful family and Oliver. I am so relieved you have nurses and support and that Oliver is comfortable. I know how much work goes into this and how important this is. I am here in Philadelphia and run a foundation for kids with neurological disease, please let us know if there is anything we can do to help your family. www.thecalliopejoyfoundation.org

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