Please consider signing the following petition to continue and expand the newborn screening program that can identify rare diseases when they can still be treated. If Oliver had been diagnosed when he was pre-symptomatic we would have had options that may have slowed or stopped the progression of his MLD. Please support any testing/research that will help other children avoid the horrors of rare, terminal diseases.
As always, thanks Oliver's Team!
https://www.change.org/petitions/u-s-heath-resources-and-services-administration-maintain-sachdnc-ensure-it-meets-before-4-24-13-and-extend-its-term
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