:(

Ollie has been having pain filled episodes every few days, that last for hours at a time. We have no idea what is causing them or what exactly is hurting him. They are so incredibly frustrating, come out of nowhere and his pain medicine doesn't help him at all. He'll scream at the top of his lungs, cry and whimper incessantly. His arms tighten against his body, his legs become stiff and he cries some more. He cries and cries and cries. The saddest most heart wrenching cry in the world. Oh to watch our child suffer like this. I often feel like I'm losing my mind seeing him in such pain. Life is so unfair.







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