Good stuff

The past 24 hours Ollie has been in a lot less pain. We can pick him up and move him from place to place without him screaming, and we couldn't even do that before the gtube surgery. We don't know what's different, (maybe sufficient nutrition and hydration?) but we hope this level of comfort stays! Look at this happy boy watching Mickey Mouse Clubhouse. He's blown about 30 kisses today, what a love bug.





Ollie's breakfast.

In about half an hour we're heading to an appointment to get Ollie fitted for braces for his feet. The purpose of the braces is to bring his feet out of their constant state of plantar flexion caused by his tight Achilles tendons (a common occurrence in children with MLD). If we can reduce the plantar flexion we can take some stress off of his lower leg muscles and his feet and reduce the spasticity which causes him some pain.