Tuesday, July 24, 2012
Not having the best two days, it seems we may need to up his medicines, though we're trying to figure out which ones, maybe all of them. The past two nights Ollie has been having strange and painful movements in his arms, whether they are seizures or muscle spasms we don't know yet. But we know they are causing him quite a bit of discomfort. His neurologist thinks they sound like seizures and has told us to double his dose of Keppra at night and schedule a sleep EEG. It's been taking us hours to get him to sleep at night. 2 hours last night, over 4 hours on Sunday night. He can be simply exhausted, he'll fall asleep, but within a minute or two the painful jerky motion in his arms wakes him up. We haven't been able to leave the house because he's been really uncomfortable in general. All he's comfortable enough to do right now is sit in the glider with one of us and read or watch TV.