tag:blogger.com,1999:blog-3850351670257978334.post4156133155590740880..comments2023-06-03T08:13:30.022-04:00Comments on Oliver's Team-Making Each Moment Count: UghhhhKatie and Chrishttp://www.blogger.com/profile/00240721524428188625noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-3850351670257978334.post-13483468004588502382012-08-12T23:57:52.626-04:002012-08-12T23:57:52.626-04:00Still thinking of you daily. My heart breaks that ...Still thinking of you daily. My heart breaks that anyone should have to go through this with their child. May you find comfort and peace in one another.<br /><br />Lynette RigdonLynette Rigdonnoreply@blogger.comtag:blogger.com,1999:blog-3850351670257978334.post-42512681021230970632012-08-01T21:00:21.601-04:002012-08-01T21:00:21.601-04:00Katie,
I only know you through Allie Franco and he...Katie,<br />I only know you through Allie Franco and her prayer requests for your family. Do not apologize for anger, it will be the catalyst joe you to get Ollie the care he needs and deserves. I had a thought as we have recently had some medical issues and were asked 4 times in one hour the same questions....our story never changed but even so the doctors failed to get some very specific meds right. You may want to keep a notebook with copies of your story and current meds. It will keep you from having to rely on your memory and repeating yourselves. If Childrens is a teaching hospital and you are annoyed (as we were in Danbury), you have every right to refuse being a case study for interns. <br />I will keep you and your family in my thoughts and prayers.Lisa Ageehttp://www.goatboy.usnoreply@blogger.comtag:blogger.com,1999:blog-3850351670257978334.post-86127611268459762342012-08-01T08:37:22.105-04:002012-08-01T08:37:22.105-04:00Katie, I'm so sorry to hear about your experie...Katie, I'm so sorry to hear about your experience at CT Children's. We, too, had a horrible experience there and although it took some work, we moved our child to Mt. Sinai in NYC. I can't say enough how superior care is in the city compared to Hartford. New York is one of the world's top medical centers and trust me, it's worth the drive.Globally Emmihttps://www.blogger.com/profile/10286350543881059768noreply@blogger.comtag:blogger.com,1999:blog-3850351670257978334.post-28024907535560543722012-08-01T08:25:55.157-04:002012-08-01T08:25:55.157-04:00Katie...(sorry in advance for the long post)
Don&...Katie...(sorry in advance for the long post)<br /><br />Don't you dare ever feel sorry or wrong for putting your foot down. Doctors, though they can do amazing work, can sometimes become desensitized and they forget that over and above anything else, this is your baby and emotion plays a big part no matter what they may think. This is your baby and nobody, and I mean nobody knows him better than you. You always have the right to tell everyone to get out and give you and your family a minute. It is wrong that you have to repeat things over and over again and just from having a long hospital stay when Ashley was little (granted no where near as invasive as Ollie's) you need to go to the higher ups and tell them its not acceptable. He is a baby and telling you guys that they can't fit him in is just not cutting it. I know its hard for you to be loud and voice your opinion but you are going to have to be Ollie's voice. You can do this! You are so much stronger than you know. I am so proud of you for putting your foot down this first time. You have no idea how much stronger you can be. I wish you could feel what it is like when I read your posts, they are so strong and clear that there is no question of how you are feeling or what you want to say even when you don't know you are saying it. We are all hear for you, sometimes just in the background sending support and prayers your way. My Ashley was repeating a motto from finding Nemo the other day when she was learning to swim, "Just keep swimming, just keep swimming." And with the murky waters you are treading is probably the one good piece of advice I can give you. Just keep swimming! Don't let anyone get in your way!! <br /><br />Love always!<br />NicoleNPetersen82https://www.blogger.com/profile/01290636998401393475noreply@blogger.comtag:blogger.com,1999:blog-3850351670257978334.post-83700095772688976292012-08-01T01:35:30.787-04:002012-08-01T01:35:30.787-04:00Katie,
Thinking of you guys. You and your husband ...Katie,<br />Thinking of you guys. You and your husband are inspiration to us all! I hope Oliver has a good night's rest. I'm sure he is thinking "My mom is bad a**" !!! Keep your voice ;)Alicia G.noreply@blogger.comtag:blogger.com,1999:blog-3850351670257978334.post-50867124246584218332012-07-31T23:11:10.430-04:002012-07-31T23:11:10.430-04:00Don't mess with Mama Bear! Katie - I don't...Don't mess with Mama Bear! Katie - I don't know you (my son Matt had Chris this past year and I teach 5th grade in Bethel) - but you are in my thoughts and prayers daily. There is nothing you will do in your lifetime that is more important than the work you are doing now for Ollie - I admire you so much for your strength and courage. Never apologize for being his advocate - and saying "no" and meaning it. God bless...Mary Liquorinoreply@blogger.com